Patient Advocacy/Empowerment

Evidence suggests that cancer survivors who participate in support groups are less depressed and anxious, have better social well-being, and are more knowledgeable about their disease process.
Whether it is completing a marathon or taking a cruise to celebrate a 50th wedding anniversary, life goals are essential for optimal health and well-being.
Patients diagnosed with cancer and going through treatment often experience significant changes to their appearance and consequently struggle with their body image.
The Hoag Family Cancer Institute (HFCI) provides robust services including diagnosis-specific oncology nurse navigation (ONN), social workers, chaplains, support groups, dietitians, and other programmatic features for patients and families.
Poor health literacy can lead to poor health outcomes. Helping patients to comprehend complex health information decreases their risk of negative outcomes while providing an optimal approach to patient-centered care.
The Cancer Support Community (CSC) has designed a patient/provider discussion tool for patients with chronic myeloid leukemia (CML).
Patients with advanced neuroendocrine tumors may develop carcinoid syndrome, a rare condition characterized by debilitating symptoms, including diarrhea, flushing, and valvular heart damage, that can greatly affect patient social and physical functioning.
In this special edition of the Evidence into Practice Newsletter, the authors discuss supporting and empowering patients to make informed decisions, navigating the healthcare system, and building strong partnerships with providers while working toward system improvement to support patient-centered care.
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